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iris1

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Comment: hi my name is iris,i have...

Note: This aidpage was started as a comment on "Info: Foundation Grants, Charity..."

hi my name is iris,i have lost a daughter 16yrs old to the rare disease myelodysplasia,1to5 recorded cases in u.k.,can you help me to set up charity in her memory to help other families,from the pain suffered,and the need for more research in this disease,so no more mistakes are made as in my daughters case,as she was wronly diagnosed,because this disease is so rare in teenagers,she fell under the usual medical loophole,if the age doesn t fit,if its not in the medical journal,we haven t a clue what it is,too late for debs,please help ,so it won t be too late for other much loved children warmest regards IRIs
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